our Resources

Association Resources

 

 

 

Surveillance for Traumatic Brain Injury in Tennessee

Surveillance Summary, January-June 2014

 

Introduction

 

An estimated 8, 000 people each year sustain a traumatic

brain injury in Tennessee. A Traumatic Brain Injury

(TBI) is defined as an acquired injury to the brain caused

by an external physical force that may result in impairment,

partial or total disability, or death.

 

For more information please Download the PDF.

 

 

The Brain Injury Association of Tennessee provides the following services:

 

Service Coordination in the Middle TN area

The Service Coordinator's role is to work with survivors and their families to assess their current resources and needs.

 

TBI Families Share Peer Mentoring

TBI Families Share helps bring people together to talk about living with a brain injury. Both the mentor and the partner learn from one another.

 

Caregiver Support Network

This network may benefit you if:

 

  • because of family trauma, you find yourself living in an alternative universe called "brain injury," your world is suddenly upside down, and you are trying to find your way.
  • you provide ancillary assistance to a caregiver as part of a total support network.
  • you find yourself with "compassion fatigue" and would like to understand how to better avoid that problem.
  • you are providing the main resources in the care of someone living with a brain injury and would like support for yourself in the process.

 

Support Groups (Survivors and Families)

The Brain Injury Association of Tennessee helps to organize and facilitate several support groups in Tennessee.

 

Statewide Annual Conference

This year's annual conference, "Voices of Brain Injury," was held on March 28, 2014 in Nashville, TN.

 

 

 

Tennessee State Resources

 

Download the State of Tennessee Traumatic Brain Injury Services Directory and Resource Information Guide.

 

For additional information about resources and services available in your area, contact your local Service Coordinator.

 

Chattanooga Area Brain Injury Association

The goal of the Chattanooga Area Brain Injury Association is to improve the quality of life for persons with a brain injury and their families. Last year, the Chattanooga Area Brain Injury Association served more than 350 brain injury survivors and their family members through vital services that help them understand and adapt to the trauma that has consumed their lives.

 

Council on Developmental Disabilities

They offer a "Partners in Policy Making" class for people with disabilities and their families. This is a free class that is held from Sept - April one weekend a month except December. Food, hotel room and class supplies are included.

 

Disability Rights Tennessee

Disability Rights Tennessee advocates for the rights of Tennesseans with disabilities to ensure they have an equal opportunity to be productive and respected members of our society.

 

Easter Seals

The mission of Easter Seals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community.

 

Project BRAIN

Project Brain is a resource and training network for education professionals, health professionals, and families who support students in Tennessee with traumatic brain injury (TBI). Partially funded by federal grant from the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB), this project is managed by the Tennessee Disability Coalition in partnership with the Traumatic Brain Injury Program of the Tennessee Health Department.

 

Service Coordination Program

Service coordination is designed to help bridge the gaps in provision of services to survivors of brain injury and their family members. The service coordinator will help to identify services within their geographical service area that would be of benefit to the consumer.

 

Tennessee Department Of Health

 

 

Tennessee Disability Coalition

The Disability Coalition is a statewide alliance of advocacy, planning, service provider, and professional organizations, and individuals committed to creating a society that values, includes, and supports individuals with disabilities and their families.

 

United Cerebral Palsy of Middle TN

United Cerebral Palsy of Middle TN has programs for people with all disabilities, not just cerebral palsy. They have several programs including equipment exchange, sports night, and wheelchair ramps.

 

Vanderbilt Trauma Survivors Network

Trauma Survivors Network understands that coping with a traumatic event goes on long after the crisis is over. That's why we developed the Vanderbilt Trauma Survivors Network, a group of trauma survivors, their families and friends dedicated to supporting one another.

 

 

National TBI Resources

 

Brain Injury Association of America

The mission of the Brain Injury Association of America (BIAA) is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury. They are dedicated to increasing access to quality health care and raising awareness and understanding of brain injury.

 

The Brain Trauma Foundation

Since 1986, the Brain Trauma Foundation dedicated its mission to improving TBI patient outcomes worldwide by developing best practice guidelines, conducting clinical research, and educating medical professionals and consumers.

 

BrainLine

BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury.

 

Facts About TBI

The Centers for Disease Control covers brain injury topics including concussion and mild TBI, severe TBI, concussion in sports, clinical diagnosis and management, TBI statistics, long-term outcomes, causes and risks of TBI, and prevention.

 

Mayo Clinic

Mayo Clinic covers brain injury topics including definition, symptoms, causes, risk factors, complications, tests and diagnosis, treatments and drugs, prevention, and coping and support.

 

TBI Model Systems

The TBI Model Systems website has consumer fact sheets about TBI topics including understanding TBI, sleep, driving, cognitive and emotional problems, fatigue, seizures, returning to school, headaches, depression, rehabilitation, balance problems, and sexuality.

 

Traumatic Brain Injury Model System Information Network

This website is also part of the TBI Model Systems, and includes a list of home-based cognitive stimulation activities, rehab tip sheets, and TBI newsletters.

 

Understanding Brain Injury

A series of videos covering brain injury basics, anatomy of the brain, TBI causes, effects, and classifications, acquired brain injury, and practical advice for coping with brain injury.

 

Cerebral Palsy Causes

Cerebral Palsy Guide provides parents with information to better understand their child’s diagnosis like the causes and treatments of cerebral palsy.

 

Cerebral Palsy Group

The Cerebral Palsy Group is dedicated to providing information, material and resources that is available to both families as well as those who have been diagnosed with cerebral palsy.

 

Specific Topics and Populations

 

Children with TBI

The Pediatric Brain Injury Foundation's mission is to provide knowledge and support to families and caretakers of children with Brain injury, and advocate for those children. Their primary focus is to educate parents and caretakers about Brain Injury and provide referral support to connect them with available services. Our secondary focus is to advocate for children who have survived a TBI as a result of abuse.

 

Mayo Clinic

Understanding Brain Injury: A Guide for Employers is one of the most-requested publications offered by the Department of Physical Medicine and Rehabilitation at Mayo Clinic. This useful guide for employers provides information about what to expect, what to watch for, and how to help employees who have sustained brain

injuries adjust to the workplace.

 

Brain Injury Handbook

An Introductory Guide to Understanding Brain Injury for Employers

 

Continuum of Care after TBI

This page on the Brain Injury Association of America depicts brain injury treatment in an orderly progression from trauma care to community integration. But very little about brain injury is orderly. Individuals who sustain brain injuries may enter, exit and re-enter treatment at any point along the continuum. Treatment may be needed continuously or on an intermittent basis throughout the individual's lifespan.

 

Instrumental Needs

This winter 2013 Shepard Center magazine covers a variety of TBI topics. Page 27 of the magazine has a list of organizations that support fundraising for families impacted by TBI.

 

Military OneSource

Military OneSource information on TBI, including types of TBI, symptoms, assessment, treatment and rehabilitation, and a section for family members.

 

Rancho Levels of Cognitive Functioning

This website will explain the "Rancho Levels" that may be used in the hospital. The Rancho Levels of Cognitive Functioning is an evaluation tool used by the rehabilitation team. The eight levels describe the patterns or stages of recovery typically seen after a brain injury. This helps the team understand and focus on the person's abilities and design an appropriate treatment program.

 

Veterans and TBI

The mission of the Defense and Veterans Vrain Injury Center is to serve the active duty military, their beneficiaries and veterans with traumatic brain injuries through state-of-the-art clinical care, innovative clinical research intiatives and educational programs, and support for force health protection services. DVBIC fulfills this mission through ongoing collaboration with the DoD, military services, Department of Veterans Affairs (VA), civilian health partners, local communities, familites and individual with TBI.

 

Psychosocial Resources for Survivors and Caregivers

 

Caregiving

A BrainLine webpage that covers the experience of caregiving and brain injury: For people whose loved one sustains a traumatic brain injury, especially a moderate to severe injury, becoming a caregiver can happen suddenly, without warning. One day you are in the office answering emails or out in the garden pulling weeds and the next your loved one is seriously injured and everything has changed.??Few illnesses or injuries result in the devastating and overwhelming damage that can accompany severe brain injury. The loved one who sustains a brain injury is no longer the same person: he or she may behave differently, think differently, and take in the world differently. And when one member of a family changes, the entire family changes.

 

Caregiver Guide

A guide for caregivers that is produced by the Shepard Center.

 

Family and Caregivers

The Family and Caregivers webpage from the Brain Injury Association of America covers the immediate aftermath of brain injury, later in the hospital, managing at home, managing stress, long-term issues, and useful resources and information.

 

National Center on Caregiving

The National Center on Caregiving that assists the caregiver in coping with behavior problems after the brain injury.

 

Survivor Guilt

While survivor guilt is not experienced by everyone, and may vary a great deal in intensity, it appears to be a common experience. The following article answers some questions survivors may have after experiencing a tragedy.

 

 

 

 

Contact

Brain Injury Association of Tennessee

955 Woodland St

Nashville, TN 37206

 

Office: (615) 248-2541

Fax: (615) 383-1176

Helpline: (800) 444-6443

© 2015 Brain Injury Association of Tennessee. All Rights Reserved